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Personalized Medicines for Rare Mutations Are Focus of HIT-CF in EU

HIT-CF, a European Union-funded research project, is working to provide personalized disease-modifying treatments to cystic fibrosis (CF) patients with rare CFTR mutations who lack effective..

The importance of Rehabilitation for all people with dementia

Watch our  webinar, The importance of Rehabilitation for all people with dementia,  now! In September 2021, DAI hosted a series of four “Meeting Of The Minds” Webinars, specifically focused on..

The Best Beginner Sewing Machines That Make Crafting Sew Easy

Take your DIY projects to the next level by using one of the best sewing machines for beginners to create clothes, accessories, and even underwear. From sourdough starters to small container..

Hard times with Multiple Sclerosis

I think most of you reading this already know that I have had Multiple Sclerosis since I was only 19 years old. Living with MS for 21 years has not been easy, but I also try to not let it … Continue..

Ice Pick Headaches (Ophthalmodynia Periodica): Causes, Symptoms and Treatmen

Schizophrenia Episode Caught On Camera + Commentary After

Schizophrenia Episode Caught On Camera + Commentary After I'm Michelle Hammer and I have Schizophrenia. I set up a security camera to record myself having schizophrenia psychosis episodes. I want to..

The 11 Best Cat Strollers For Transporting Your Furry BFFs

Even if your cat sticks to the indoors, it’s nice to mix it up sometimes and bring them for a safe adventure outside. And whether you’re out for a walk through the neighborhood, out running errands..

Kim Kardashian Responds To Kanye After He Blasts Her About North’s TikTok Use

Kim Kardashian is defending herself after Kanye called her out for letting North use TikTok North West, first child of Kim Kardashian and Kanye West, has, at the tender age of 8, garnered more TikTok ..

Adaptive Winter Boots with easy-on styles..

#MSCOVID2019. Interacting with your drugs

How do you know if your drug is likely to interact with Paxlovid, which is one of the anti-viral drugs for SARS-CoV-2 You can ask your Doctor? They may go to the latest advice for the NHS and for..

18 Best Comfy Cozy Kids Robes For Bath Time, Pool Time, & All The Time

Looking for cozy kids’ robes and cozy baby robes? With the kids staying home more than usual these days, you may have noticed that the laundry is piling up—and fast. Don’t even get us started on the..

Oakland caregiver finds connection through Black support group

Creola was a strong independent Black woman who was a single mother of four children in the 1970s. When she was diagnosed with dementia 40 years later, her children couldn’t believe it. Jeffrey, one....

This Gel Pillow Might Give You The Best Sleep Of Your Life

Good sleep is hard to come by. All we really want is the kind of sleep that goes uninterrupted by our bladders, kids, or the dog. Eight hours of pure sleepy sleep. To even get close to that, it helps ..

Risk Factors for Sleep Apnea Differ in Children and Adults

Risk factors for obstructive sleep apnea (OSA) — a condition in which airflow is blocked intermittently during sleep — differ between children and adults with cystic fibrosis (CF), according to a..

What would you do if?

Everyone should know by now how contagious COVID is and those at higher risk due to a weak immune system need to be extra cautious. With that said, what would you have done if your neighbor, who was..

Person-first Language Doesn’t Always Matter

“Do people with cystic fibrosis really call themselves ‘CFers’?” a friend once asked.  “Some do, some don’t.” I told her about the shorthand terms I’ve seen used in the community, such as “cysters”..

Why is aluminum in vaccines? Isn’t it dangerous? | Dr. Offit Answers YOUR Question | CHOP

Dr. Paul Offit explains why aluminum is in vaccines, how it helps, where else we are exposed to it, and when it is a problem. He also addresses concerns related to the injection versus ingestion of..

Liver Blood Supply

Unlike other organs that are supplied with fresh, full of life, oxygen-rich blood to support the livelihood of the tissue, the second largest organ in the body, the liver, is instead supplied with..

An Ode To The Olympic Parental Reaction

The 2022 Winter Olympics in Beijing will kick off later this week. And while it’s great for the athletes — they’ve worked so hard to get there — let’s not forget the greatest sport in the Olympic..

Smouldering MS

Smouldering multiple sclerosis: the ‘real MS’.Giovannoni G, Popescu V, Wuerfel J, Hellwig K, Iacobeus E, Jensen MB, García-Domínguez JM, Sousa L, De Rossi N, Hupperts R, Fenu G, Bodini B, Kuusisto HM,..

COVID Vaccine responses and ocrelizumab

Learning from other B cell deficiencies. It says what we think we know about MS mRNA vaccine boosting enhances antibody responses against SARS-CoV-2 Omicron variant in patients with antibody..

‘Mucus of the Night’: Dealing With CF-related Sleep Issues

For those unfamiliar with the Broadway sensation “Phantom of the Opera,” one of its most famous songs is called “The Music of the Night.” I was enjoying Sir Andrew Lloyd Webber’s music the other..

Looking After The Home and Wellbeing of a Loved One As They Grow Older.

If you have elderly parents, family members, or those that you care about, you want to make sure that they are living in a home that is able to support their needs and to make sure that they are safe,..

Self-screening Tool Developed for Nonwhite CF Populations

A new tool has been developed to help people self-screen for symptoms of cystic fibrosis (CF), which may be particularly helpful for identifying the disease in nonwhites — namely in Black, Indigenous,..

Finding the ‘me’ in Dementia

 As two 3rd year occupational students from Aberdeen, the prospect of completing a role emerging placement in an acute hospital in Dumfries (DGRI) was daunting. As students we are used to being told..

Games Like Wordle To Make The Car Rider Line Suck Less

If you finished Wordle today, you might be looking for a similar game to play until tomorrow’s puzzle arrives To say that everyone is a little obsessed with Wordle, the daily word-guessing game, is a ..

Personal Recovery in Bipolar Disorder

February 24th, 9 AM PST | Register now!   In this webinar, Dr Mezes and Professor Jones will share their research into what personal recovery means to individuals with lived experience of bipolar..

Holy Shirt Balls, How Do We Stop Cursing?! Slow Your Swearing With These Tips

All those cheesy shirts that say things like, “I’ve got a good heart, but this mouth!” or “This mom drops f-bombs” are, well, let’s just say most of us can probably relate. We might even have a..

The Advocacy Brief – Issue #9

Welcome to your February 1, 2022, edition of The Advocacy Brief. Updates on Access to Trikafta Looking ahead to 2022 2022 is shaping up to...The post The Advocacy Brief – Issue #9 appeared first on..

How to overcome Omicron stresses

No matter what state or country you are living in, we have all been living through the fears of COVID. This has been causing stress and worry for two excruciatingly long years. The isolation, social..

Where are the Caregivers and People with Dementia, Now?

Where are the people with dementia and caregivers of the month, now? Thanks to social media, emails, and phone calls, here are updates on about half of them. The post Where are the Caregivers and..

ProfG is back!

Well, that headline should give us a peak on our dashboard ? But seriously, TheMSBlog is pleased to welcome ProfG back for a visit, persuaded by our PPI member and MS editor-at-large, Rachel Horne,..

5 Outdoor Activities That Will Improve Your Mental Health by Elizabeth Howard

Spending more time outdoors will do wonders for your mental health. While research has shown that being outdoors helps alleviate stress and the symptoms of emotional illnesses, you can easily..

CF Foundation Tops $100M in Funds to Improve Infections Treatment

The Cystic Fibrosis Foundation (CFF) has raised more than $100 million in funding to date through its Infection Research Initiative, designed to improve the detection and treatment of chronic..

15 Best Kids’ Dandruff Shampoos To Help Fight Flakes And Itchiness

If you’re on the hunt for the best dandruff shampoo for kids — whether your toddler or your teen — stay tuned for the best dry scalp-soothing, flake-reducing, tea tree-oil infused shampoos on the..

Call for Participants: Study of Inherited Bipolar Disorder

This post is the second of a part of a three-part series where PhD student Nathalie Sagar will document her dissertation research about hereditary bipolar disorder, titled Stories of Second..

Is Mental Illness Trendy Now?

Is Mental Illness Trendy Now? from A Bipolar, A Schizophrenic, and a Podcast “Have we gone so far that the actual definition of mental illness has been lost and it has been sort of retconned to mean ..

15 Best Nontoxic Crib Mattresses So Baby And Toddler Can Sleep In Total Comfort

Crib mattresses come in all forms — organic crib mattresses, non-toxic crib mattresses, ultra-supportive crib mattresses… the list goes on. So, which one should you choose? And most importantly,..

Research Wrap: Brain health and Physical activity

We thank Laura Diaz Garcia for our February research blog, focused on the impact of physical activity and brain health. Let’s talk about brain health: Physical activity By Laura Diaz garcia There is..

Schizophrenia Homelessness and Crime

Schizophrenia Homelessness and Crime On January 15, 2022, 40-year-old Michelle Go, was shoved in front of a Subway train and didn't survive. She was pushed by a man named Martial Simon who was a..